LIVING WITH ADPKD
"What are tips
to help manage
Keeping a healthy lifestyle helps to avoid gaining too much weight, since that can put a strain on your kidneys and cause your blood pressure to rise. High blood pressure may cause damage to your kidneys.
Eat a heart-healthy diet
What to eat
Whole foods, such as:
- Whole grains and high-fiber carbohydrates that are low in sodium
- Lean protein with omega-3 fats, such as fish and eggs
What to avoid
- Food or drinks that contain lots of sodium, as this may cause your blood pressure to rise
- Smoking may cause your blood pressure to rise, which can cause damage to your kidneys
Listen for tips from those first-hand living with the disease.
"How should I talk to my family and friends about ADPKD?"
It’s important to talk about your ADPKD diagnosis for a number of reasons:
- ADPKD runs in families, but it can affect members of the same family in different ways.
- An early diagnosis can mean treating high blood pressure and making lifestyle changes to protect kidney function to better manage ADPKD and disease-related complications.
- Genetic counseling and genetic testing can be helpful for couples planning a family.
- Early screening and diagnosis may make it possible to continue leading an active, productive life for longer.
- Early diagnosis may lead to early screening of family members with ADPKD as well.
- Learning about ADPKD and having an open discussion may help families reduce fear and tension, whether other family members have ADPKD or not.
ADPKD can cause stress for families, especially because it is passed down from your parents. Despite this, many experts suggest that you share information about your diagnosis, especially with adult family members. This gives them the opportunity to learn about what’s going on with you and to become educated about the condition.
Discuss your daily struggles and triumphs with people you trust. They can help you make decisions about your treatment options. They can also help you make healthy lifestyle changes that may help you keep your kidneys healthy.
ADPKD=autosomal dominant polycystic kidney disease.
LOOKING FOR MORE LIFESTYLE TIPS?