"How do I find a doctor to assess my kidney size?"

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"How should I prepare for my doctor’s visit?"

Once you’ve been diagnosed with ADPKD, you may want to consider having a variety of healthcare providers on your treatment team, including a:

The relationship between your nephrologist and PCP is especially important

  • ADPKD is a form of chronic kidney disease (CKD)
  • Adults with CKD who are managed by both a primary care physician and a nephrologist are more likely to have their CKD progress and complications more closely monitored
  • This is especially important for Black and Hispanic people. A study has shown they are significantly less likely to see a nephrologist before end-stage kidney disease

When speaking to both doctors, make sure your nephrologist and primary care physician are communicating and working together.

"How can my healthcare team help me?"

Each member of your ADPKD healthcare team is a great resource for support. They can give you advice on
managing symptoms and even help you take a more active role in your treatment.

Here are some tips to get the most out of your ADPKD healthcare team:

Partner with your nephrologist

Talk to your nephrologist about his or her experience treating ADPKD, as some have more experience than others. You may have a choice to select a nephrologist who understands your disease and is aligned with your goals. 
Find one who is proactive in your disease management goals and can help you discover a treatment option for ADPKD.

ADPKD=autosomal dominant polycystic kidney disease.

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