DIAGNOSIS

"What are the signs and symptoms of ADPKD?"

You might notice signs and symptoms but not know they’re from ADPKD.
That’s because this disease also affects other parts of the body. 

With many health conditions, you know something is wrong because you don’t feel well. ADPKD is different. Damage can be taking place in your kidneys for years while you feel perfectly fine.

ADPKD can be hard to diagnose because people often do not experience signs until they are between 30 and 50 years old. Hear personal stories from people learning about their ADPKD diagnosis.

ADPKD=autosomal dominant polycystic kidney disease; UTI=urinary tract infection.

"How will my doctor determine if I have ADPKD?"

Initially, patients may present with symptoms such as pain, high blood pressure, and blood in the urine. These symptoms alone are not enough to diagnose ADPKD.

A nephrologist, who specializes in kidney disease, will determine if you have
ADPKD based on your family history and imaging tests.

Your family history of the disease

  • Even though family members can experience ADPKD differently, knowing your history is helpful
  • Genetic testing is available to help confirm a diagnosis of ADPKD

Imaging test options for ADPKD diagnosis

The only way to find out if you have ADPKD is to talk to your doctor about getting screened.

ADPKD=autosomal dominant polycystic kidney disease;
CT=computed tomography;
MRI=magnetic resonance imaging;
PKD=polycystic kidney disease.

We’ve detected that you are using an outdated browser. For Windows users, this site is best experienced using Google Chrome, Firefox, or Microsoft Edge