"How can I join

Living with PKD can be both emotionally and physically difficult. Knowing you are not alone can have a positive impact on your condition. Connecting with others who are going through a similar experience can give you the confidence to better manage your PKD.

Whether you’re sharing your story, listening to someone else’s, or catching up on the latest scientific breakthroughs about PKD, being part of a community can be inspiring and healing. Get connected today and explore some resources and patient-focused organizations within the PKD community.

This is not an exhaustive list. Please note that Otsuka Pharmaceutical, Inc. does not control or influence any of these websites.

Foundations and informative sites


ADPKD=autosomal dominant polycystic kidney disease; PKD=polycystic kidney disease.

We’ve detected that you are using an outdated browser. For Windows users, this site is best experienced using Google Chrome, Firefox, or Microsoft Edge