FOUNDATIONS & ADVOCACY GROUPS
"How can I join
Living with PKD can be both emotionally and physically difficult. Knowing you are not alone can have a positive impact on your condition. Connecting with others who are going through a similar experience can give you the confidence to better manage your PKD.
Whether you’re sharing your story, listening to someone else’s, or catching up on the latest scientific breakthroughs about PKD, being part of a community can be inspiring and healing. Get connected today and explore some resources and patient-focused organizations within the PKD community.
This is not an exhaustive list. Please note that Otsuka Pharmaceutical, Inc. does not control or influence any of these websites.
Foundations and informative sites
Provides charitable assistance to people
on dialysis who need help with the costs of
treating kidney failure
American Association of Kidney Patients (AAKP)
Education and advocacy for kidney patients in the United States
Global alliance of patient organizations worldwide, dedicated to finding a cure and offering disease education for PKD
Information on ADPKD from the National Center for Advancing Translational Sciences
ADPKD=autosomal dominant polycystic kidney disease; PKD=polycystic kidney disease.